Archive for the ‘Epilepsy’ Category

Weekend Recap – Seizures & Sunshine

Sunday, August 22nd, 2010

There’s no describing what a seizure entails let alone how my mood will swing with each electrical mis-firing that happens. Again, I’m missing a large chunk of my tongue and while I know it’ll grown back it’s just yet another reminder of my dysfunction. On the onset of the weekend, I did regular tasks like going to the dentist, a bit of grocery shopping and minimalistic chores of the sort. Firday went off pretty much without a hitch. A few good friends and I went out to play pool at Shoreline Billiards. After a few jokes were slung and table were ran, the lot of us headed to have a bite to eat in downtown Palo Alto. The food at “Pasta?” was OK but it’d be a secondary spot especially for nights that were low key. I decided this as we were finishing our drinks at “Joya” another pub in the downtown area. Overall Friday was a big success.

Saturday rolled around and I was feeling fine. I did my exercises and another one since I had missed my workout the previous day. I had missed my weekday workouts as well and needed to take this time to take care of myself. I thought I was until I went black. When I awoke, a bunch of strangers were in my room asking me to sit down. The clouds parted quickly as I began to recognize them as paramedics. If I was laying down and not having sustained seizures, I wish the paramedics were not called but they were called by my roommates for my own safety and theirs. I understand this but I don’t think they understand what a financial hardship these seizures put me in with the ambulance ride, emergency room staff and all other items loaded on the bill. I was prescribed a new drug to stop sustained seizures but I don’t (and cannot have) a true gauge on this since I don’t want to have sustained seizures and have more blank spots in my life.

There was one bright spot to Saturday in which a very close friend dropped her daily tasks and spent the time with me in the emergency room as I was all tangled in wires and tubes for monitoring. What do I say to her? How can I ever repay her for her kindness? I think that I’ll never find something that truly allows me to express how much gratitude I have towards het. She’s done this before and it was just as special, but this is such an unselfish act that it seems impossible for me to recognize her and her acts for the kindness, selflessness and generosity that have been shown. I’ll keep striving to find a suitable award, token gift but I do not think that this (or these) actions can be properly rewarded with something of financial gain. The best I can do is remain her friend for as long as she allows me to helping her reach her dreams and goals…I think.

Sunday was a day of rest. With my workouts and the seizure I was sore in all extremities including my tongue. Hey hospital friend left her car in San Bruno and needed a ride. Luckily I am surrounded with other good friends and it took little effort and minimal organizing to not only get to our destination but meet up with our favorite teacher from USF. After a few margaritas and some laughs we headed home our separate ways. Hugs and handshakes flew but we all had a wonderful time.
I’m trying to look on the positive side here. While I’m a bit down and wondering about all things in life (future, jobs, family) With few exceptions this was a very above par weekend. I could have done without the seizure bit but at the same time I have a new wonderful memory. I wish I spent more time with these friends but I also realize that the times that I do spend with them are so very special already. I try to tread cautiously with them as well since I have a fear of becoming a burden or depressing.

What are you trying to say?
In short to those I spent time with this weekend, I just want to say thanks. While I’m not completely whole (mentally) you have definitely helped me over a very difficult bridge this weekend. I only hope that the compassion that you have shown me is given back to you ten-fold.

You can’t dream

Friday, June 11th, 2010

As my mother was driving me home from work, which was nice, a motorcycle passed us by.

I said to my mother as it passed us “Man that looks like a dream”

She replied with something I never thought she’d say to me and what once was a really decent day has me questioning and thrown me pretty hard. She said, “‘I’m glad you can’t drive then”. While I know what she meant, this was possibly the worst thing she ever said to me in her or my life. I’m confused, hurt, astonished and all sorts of emotions now and … just wow.

It was good to be happy for a while though.

Where am I?

Monday, January 18th, 2010

I wish I knew.

I’ve deactivated my FB account because it hurts. it hurts because I don’t know who I am, where I am and what I am doing. I see others that are so strong, fulfilled and complete yet I am empty and alone.

Poetry:

I write, message & express what I feel silently to the ether.
Communications of my fears are being realized.
The shadows of my mind creep and swell
I’ve considered them cowards and selfish
Fearfully now think may they have found an answer
A solution that I’ve neglected to admit
Am I courageous or selfish enough
Can I defeat these angels
Will the demons keep me lost
How long can I suffer

(more…)

Yesterday sucked then it was good but then sucked again and not in a good way

Friday, September 19th, 2008

Yesterday I went to work as always and was going to have a good day and a productive day when all of a sudden *BAM* I’m unconscious having yet another seizure. This one particularly sucked as not only were my medicine levels up as they needed to be but somehow I F-ed up my right ribs. It hurts to walk, sleep, move too fast and basically anything upper torso related. As for Judo? I can’t fathom it until my rib gets better. As much as I love the people there I can’t stand the pain rolling over in bed so how am I going to do a ippon seio nagi?

I’m sure my manager is less then impressed with me but I’m passed caring right now. Even after the drama…the work still got done. She’s not a bad lady but her communication skills are lack luster.

School is ok. I have a mid-term coming up soon I have to prep for.

Lately I’ve been trolling craigslist , yahoo jobs and even linkedin jobs to see whats out there. If I see something that I like I’m on it. Today I saw something that sucked again and rather bothered me. This same thing has bothered me for years on end but today for some reason, on Talk like a Pirate Day of all days, I’m extra sensitive.

That thing that irritated me today was for a job that I wanted to apply for.

Must have access to a vehicle, valid driver

Guitar Hero III

Monday, July 21st, 2008

I messaged my pirate friend and asked him if he wanted to come over and have a few beers, grab some food and hang out this last Friday. He did so we did. He brought the video game Guitar Hero 3 over and we rocked out for a good couple hours. This version is a bit different in the sense that you have this thing called battle mode where you can battle others and make them mess up. We must have played long into the night as I was getting tired and missing more notes then I was hitting.

I awoke in the emergency room of some hospital. Apparently I had yet another seizure even though my pills have been well regimented. I don’t know what happened but I do know that I didn’t get out of the hospital until 4am and had a date that same day.

Not Driving sucks ass

Monday, June 23rd, 2008

I’m in a job that is being somewhat unyielding to my personal goals of earning my degree.

When I was hired I was very clear with the fact that I will be going back to school and there may have to be some scheduling arrangements here and there. Now the time has come to make these arrangements and while we have time to do so I’m getting the feeling that it’s not going to happen.

I have to find a way to get to SJSU from Menlo Park every Mon & Weds by 17:50 (so I can get to class at 18:00). The train runs right there but I’d have to leave here at 15:00 those days. I can work the extra time on the off school days but work doesn’t want to do that. So now do I put off my schooling again and find another job that will let me do this or do I do something else?

I’m pissed off but still looking for alternatives here.

Oh yeah and Hi DSP245!!!!

Your Seizures Are Affecting Your Work

Friday, May 30th, 2008

Today at work was pretty good. I felt both productive and useful. I also managed to balance some chats with some friends. BT was there for a bit, Star, Big Head, EJ, and others all stopped by to drop off a hello.

BT was a bit down today. I hope that I helped to cheer her up. I sent her the awakening and a link to one of my Zen sites that tells you how to hijack you happiness.

Today I created the calendar and deadlines, tried to upload them to the website to no avail as the servers were (and still are) down, fixed an issue with something in this thing called FRS and overall it was a productive day.

Wednesday though wasn’t so good. I had a seizure that day and that always sucks. Jump ahead to Thursday…I go to my boss and say I’m so sorry for all the trouble.

She tells me that my condition, Epilepsy, is affecting my work and I need to do something about it.

Sigh.